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Saturday, May 19 2012 @ 01:21 AM PDT

Turning The Elephant In The Room Into a Pet

The elephant in the room is the subject that everybody knows about but is afraid to bring up and talk about. In this case, it is cancer.

I know people who simply don't want to talk about death.

A good friend of mine was literally kicked out of a home because he insisted a  bit too much in talking about me and my cancer.

Others I've spoken with recently find my attitude towards my impending death somewhat refreshing, and support me completely in my blogging about it.

Many people, many different attitudes, but mostly today far more open than as little as 10 years ago; and certainly more than when I grew up.

So, read on if you, like me, are willing to make the elephant into a pet and treat it to real discussion and information.


We're now about 4 months into the process since I was diagnosed - and I'll be honest, things are going downhill a bit faster than I'd hoped.

In general, I'm doing OK - but I've lost a lot of weight (down below 160 lbs where my comfort weight is 195) and don't seem to be able to put any back on - just slow the loss.

Due to the pain caused when my organs are oriented lying down, I'm sleeping sitting up (have been pretty much for the past 6 months or so) - and as of last night, actually have a "hospital" bed that electrically elevates - got this for free via Craig's List and will pass it on the same way when I no longer need it.

I'm not going out much except for medical stuff - and not doing much of that. I'd hoped to do some traveling but neither Shirley nor I are really up to anything long (was looking at West coast of Mexico to keep the flight short) but as of yesterday I've given that thought up too - we (the boys, their girls, Shirley and I) were going to go for a week at the end of this month but have stopped the process.

I decided not to do chemo-therapy - although I have the "porta-cath" needed for it already installed (will have it taken out some time shortly) simply because I've not been able to do any advancing in the body weight or stamina area - it has been all down hill, albeit fairly slowly - and my biggest problem is hydration and constipation, both of which are major side effects of both chemo and the anti-nausea meds needed to counteract the chemo's other side effects.

Bottom line - I didn't think I'd get back enough extra time to balance off the bad times of the chemo, and even if the bad times were not as bad as average, they would still have been worse than what I'm suffering now, and I'm having problems with that already. I voted for quality over quantity.

I've spent much of the past month or so getting business things and finances straightened out - done a bit of billable business but mostly am handing it on to Ken Cillis and his son Mike. Got a "hardship" pre-payment on a couple of life insurance policies to provide some cash and am getting things like credit card balances settled with the help of my daughter-in-law, Krysten. This is ongoing.

Shirley has found a place for her after I pass - a new senior's supported living building here in Pitt Meadows that is supposed to be finished around September - which gives you an indication that I expect to be gone by then.

We can't sell the house (had been working toward doing exactly that until my diagnosis) until I die as there is a good sized life insurance on it that (because it is with the bank, not a real insurance company) is not transferable and disappears as soon as the mortgage does - we've been paying it for all these years, might as well take advantage of it.

Anyway - that gives you a bit of an idea of where I'm at.

Tag: cancer

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3 comments

The following comments are owned by whomever posted them. This site is not responsible for what they say.
Authored by: Mary Jane on Monday, February 13 2012 @ 04:30 PM PST Turning The Elephant In The Room Into a Pet
Richard, I support you in your decisions as I know you have carefully weighed the options. My uncle and my mother both decided to not do chemo - for different reasons. This has to be each individuals choice based on a whole lot of considerations.

I wish there was something brilliant I could say, but there really isn't. I just want you to know you are such a treasure, have been such a wonderful friend. I think the world of you, and you have stood beside me during some tough times. I hope I can stand beside you now and offer a little something, maybe support, understanding and definitely much love and prayers.

(((((hugs))))
Authored by: Terry on Monday, February 13 2012 @ 11:47 PM PST Turning The Elephant In The Room Into a Pet
Times are indeed changing, Richard. For the better, even if it makes people squirm a little to try and talk about it. When my father was diagnosed in 1991 at age 59, he didn't want anyone to know what was really going on. I knew he was sick but not how serious it was until I got a phone call from a doctor because my mom finally decided it was time to let me in on the truth. He wanted to know if they should offer my dad kidney dialysis for a short term respite or go right to palliative care... He was dead less than 2 weeks later and I never had the chance to say good bye.

I hope there is joy for you in the weeks ahead. Thank you for all you have done to support the HWF and my efforts to make a contribution there.

Terry

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